Stem Cell Transplants, Moscow, and Borscht…life with Lisa in Russia.

About Me

The basics…my name is Lisa Stallings Malloy, and I have PPMS. Sounds like an AA meeting so far doesn’t it! I have three great boys, all grown, and one amazing grandson, Ethan. Yes I know, everyone has amazing grandchildren.   IMG_5875

 

I am 58 years old and began having symptoms in April of 2011. Like a bat hitting me over the head, they started and have never let up. In March I was skiing blue and black runs, four weeks later…I could not get through a door.

That was in 2011, diagnosis was in 2012, and a stem cell transplant in the summer of 2013 in Moscow. It went beautifully, a total, 100% success. Yes, I still had some difficulty with fatigue, walking, balance and cognitive issues. But they were so very much better than in previous years!

A life threatening infection of Sepsis last year has brought a return to see the most wonderful Dr. Denis Fedrenko. If anyone can determine a course of action to eradicate the newly hyper-activated T and B cells, it is he.

They don’t call this Progressive MS for nothin’. The T and B cells which caused the massive damage to the brain and spine are very much like the Mexican Fire Ants in south Texas. They had been laying silently underground in a massive network of tunnels. A small to large mound will appear on the surface hiding all that lies beneath. One tiny tap of the toe, and a massive army of workers head out to destroy the enemy that dared to tap the mound (body). And they bite – fiercely!

I feel the Sepsis tapped on my inactive T and B cells hidden deep within my body, and they reacted fiercely and multiplied. The cells are now in a massive network within my body, and need eradicating.

Yes, some of this! So now I will seek the wisdom of this world class hematologist and seek my future. 071121532251.ashx

4 Responses to “About Me”

  1. Anonymous

    Lisa,

    Mark Spradling here. I read Cindy Waits’ blurb in the Alumni Class Notes. When you get over to Russia, see if you can make that guy Putin lighten up a little, huh? We are praying for you and your family. All the best.

    Reply
  2. jaimet

    Lisa, I’ll be praying for you as you go through this journey.

    Reply
  3. Koreen Charnick

    Lisa,

    I’m hoping you can help me with this. I have been getting basic info from Anastasia-Dr. Fedorenko’s assistant and I’m unclear on how to get all medical documents sent to Russia? Can you please tell me how you did this? The waiting list now is up to 2017 so I want to get things sent for review as soon as possible. Please email me, I don’t have a facebook account. I appreciate any help you may have to offer.

    Reply
    • Lisa Stallings

      I sent the CD of my MRI, and a list of all my symptoms beginning with the first and moving to the present. I detailed my rapid progression in detail.I sent no medical records from neurologists. These were sent by FedEx to Dr.Fedorenko, and he responded by email pretty quickly. I do feel he will move up those he feels are in immediate need of HSCT, you will find a kinder nor more caring physician anywhere – he is the best!
      Lisa

      Reply

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